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Existing in the pause

posted by Neil Gaiman

I was meant to be in the UK for another ten days. It was the ten days I was most looking forward to: a long-overdue trip to Scotland, to St Andrews (where I would be receiving a doctorate) and to Edinburgh and on to Skye. My friend Polly's 21st birthday party. A Masterclass in story writing I was going to teach.

I was walking in to a meeting with TV execs from around the world, along with my American Gods TV posse (the people from Fremantle Media, and Bryan Fuller and Michael Green) when Amanda texted to tell me she was on a train into London from Hornchurch, our friend Anthony was dying, and we were on a plane that was leaving in three hours from Heathrow. I explained what American Gods was to the TV people, and then I ran for it.

Somehow (well, with the aid of Clara Benn) we were packed and on that plane, in the last two seats in the back. (I am not pregnant: I took the middle seat.)

We made it to the hospital while Anthony was still conscious and more or less able to communicate. I told him about the umbrella cane I had discovered for him (I get him canes, with stories, from all over the world). He put his hand on Amanda's baby-bulge, and we talked to him about the baby's name, and he smiled.




We were in the hospital with him for two days and it seemed like a lifetime. On the third day the doctors said he could go home: he would get no better, and he was slipping away.

Amanda and I have moved next door to Laura and Anthony, moved to Amanda's old family home, as we wait.

It's the morning of day four now, a beautiful sunny fresh day. It rained in the night, and the grass was covered with webs that held the raindrops, and the morning sunlight slanted in at an angle that made everything look clean and magical and whole.

Anthony's dying fast. He communicates sometimes, if he's thirsty, or hungry, or needs to pee. He groans, and rolls, and does not want to be in his bed and does not have the strength to be anywhere else. There's nothing more. He hurts, his body is failing, and the leukemia and all that goes with it is draining him away. His wife, Laura, is being remarkable: saintly and brave and helpful and a rock for all the people around. His family and his friends are here sometimes. People are around the bed, and then they move away and talk, and then they are around the bed once more.

I keep making food, and feeding people. It helps.

Amanda is here, with me, with Anthony. So pregnant,  a beam of life and light in the darkness of the dying.

We won't be waiting long.

It doesn't feel like real time. Normally, we breathe in and we breathe out, and we never notice the beat between the breath. Right now we are living in the place between the inhalation and the exhalation, existing in the pause.

Do you want to know who Anthony is? Read this:  http://www.neilgaiman.com/Cool_Stuff/Essays/Introductions/Eight_Views_of_Mount_Fuji
It's the introduction I wrote to Anthony's book Beloved Demons, in November 2013, when his cancer was in remission. It stayed in remission for a long time, but not long enough.

It starts:

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I had known Amanda Palmer for six months, and we were going on our first date. Our first date was four days long, because it was all the free time we had at the beginning of 2009 and we were giving it to each other. I had not yet met her family. I barely knew her friends.
"I want you to meet Anthony," she said.It was January. If I'd really known who Anthony was in her life then, if I'd known how much he'd played his part in raising her, I think I would have been nervous. I wasn't nervous. I was just pleased that she wanted to introduce me to someone that she knew.Anthony, she told me, was her next door neighbour. He had known her since she was a child.He turned up in the restaurant: a tall, good-looking man who looked a decade younger than his age. He had a walking cane, an easy comfortable manner, and we talked all that evening. Anthony told me about the nine-year-old Amanda who had thrown snowballs at his window, and about the teenage Amanda who had come next door when she needed to vent, and about the college-age Amanda who had called him from Germany when she was lonely and knew nobody, and about rockstar Amanda (it was Anthony who had named the Dresden Dolls). He asked me about me, and I answered him as honestly as I could.Later, Amanda told me that Anthony liked me, and had told her he thought I would make a good boyfriend for her.I had no idea how important this was, or what Anthony's approval meant at the time...
And here is a song Amanda played for him at the end of a tour, three years ago, before she ended the tour early to help get him through that first round of chemo.






Labels:  Cancer, Anthony Martignetti, Leukemia, Beloved Demons, Hallelulah, Death, Amanda

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Published on June 22, 2015 10:10
Comments Showing 1-10 of 10 (10 new)    post a comment »
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message 1: by Connor (new)

Connor Losing someone you care about is never easy. I'm sure he's glad to have his most devoted friends with him at the last. My deepest sympathies.


message 2: by S.E. (new)

S.E. Sasaki As a physician who did a lot of palliative care for my patients, allowing them to pass away at home, I think there is no greater gift a family and friends can give a loved one than to do what you are doing. Allow the person the opportunity and dignity to die in their own bed with everyone they love around them. Nothing else can mean as much to your dying family member. Love is transmitted through your touch and your presence and your energy, just being there. The energy of love is palpable and so positive. It allows your loved one to let go in peace. Bless you all.


message 3: by Emma (new)

Emma Deane I lost my father to cancer when I was 22. I remember the call: There is nothing we can; take him home; make him comfortable. I know what it means to live in the pause. I feel for you. You and Amanda and Anthony are in my heart. He knows you love him, he will carry that love with him to wherever he goes next. Love and Light.


message 4: by Lindsay (new)

Lindsay Alexander My husband and I are currently living in the pause, but in a different way. We are trying to adopt from foster care, and it has been a constant roller coaster. Can you take this child? 2 children? 3 children? Having to keep essentials for such a broad age range. Everything gender neutral. Here are some children...no wait, a relative took them. Now we found them a different home.

Living in the pause...the most simple of explanations for the most complex of emotions. Thank you for that and peace and prayers in this time.


message 5: by Cj (new)

Cj Your words have brought me joy in rough times. I wish I could do the same. However, I can't say much more than I'm sorry anyone has to go through this, but I wish you and your family and this man I cannot, do not know, the best.


message 6: by Victoria (new)

Victoria I remember watching my grandmother pass from cancer right before my eyes when I was hardly 10 years old. There was a language barrier between us. Even though my fondest memories were with her, we were never able to communicate beyond "I love you". I lived in regret for not putting forth more effort to learn her language, but I've grown to realize that we only ever needed that one sentence.

I wish you and your family hope and strength.


message 7: by Pam (new)

Pam Bustin Oh Neil - and Amanda - and all who love Anthony:
Sending a wave of love and comfort from this far Canadian shore to you all.

We've had a loss here too. My mother-in-law. 17 days ago.

I fed people, too. It was good to feed people, and make beer runs, and drive people to the hospital and back to the apartment, or the motel, or their house... wherever they needed to go. It was good to have... "missions."

Her kids all made it home in time to say their farewells and spend time with her while she was alert and able to joke and offer them comfort.

I'm thankful for that.

She took comfort from our presence. I'm sure of that.

I'm glad to hear that you and Amanda were able to get to Anthony's side and be with him for this.

Thank you for writing about this. The pause... yes.

go easy ~p


message 8: by Tatyana (new)

Tatyana Oh Neil...
I first learned about Anthony from the Amanda's book... He is a truly amazing person and I feel your pain :'(
Sending you all lots of love and support!


message 9: by Otter57 (new)

Otter57 Thanks for this beautiful reminder of the beauty of life.


message 10: by [deleted user] (new)

I hope Anthony feels better. I will be thinking about him everyday! :)


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